Publications
OIFE Magazine, the BOOSTB4 project’s clinical trial is advertised on page 29 to raise awareness in the Osteogenesis Imperfecta community across Europe (2021)
https://oife.org/docs/magazine/oife-magazine_2021-03.pdf
Melissa Hill, Jennifer Hammond, Mithila Sharmin, Celine Lewis, Mark Heathfield, Belinda Crowe, Cecilia Götherström, Lyn S. Chitty, Catherine DeVile, Living with Osteogenesis Imperfecta: A qualitative study exploring experiences and psychosocial impact from the perspective of patients, parents and professionals, Disability and Health Journal (2021)
https://doi.org/10.1016/j.dhjo.2021.101168
OIFE Magazine, the BOOSTB4 project’s clinical trial is advertised on page 29 to raise awareness in the Osteogenesis Imperfecta community across Europe (2021)
https://oife.org/docs/magazine/oife-magazine_2021-02.pdf
OIFE Magazine, the BOOSTB4 project’s clinical trial is advertised on page 29 to raise awareness in the Osteogenesis Imperfecta community across Europe (2021)
(https://oife.org/docs/magazine/oife-magazine_2021-01.pdf)
OIFE Magazine, the BOOSTB4 project is discussed in an interview with a patients family (page 15) and in a Research Announcement (page 17) (2020)
(https://oife.org/docs/magazine/oife-magazine_2020-04.pdf)
Cecilia Götherström & Lilian Walther-Jallow, Stem Cell Therapy as a Treatment for Osteogenesis Imperfecta (2020) https://doi.org/10.1007/s11914-020-00594-3
OIFE website, The BOOSTB4 project is mentioned in a new section about research projects:
https://oife.org/what-we-do/research-development/
OIFE Magazine, The BOOSTB4 project is mentioned in a Research Announcement on page 31
(https://oife.org/docs/magazine/oife-magazine_2020-01.pdf)
OIFE Magazine, "Interview with Cecilia Götherström and Eva Åström" page 12-13, Research Announcement on page 21 (https://oife.org/docs/magazine/oife-magazine_2019-02.pdf)
Melissa Hill, Celine Lewis, Megan Riddington, Belinda Crowe, Catherine DeVile, Anna L. David, Oliver Semler, Magnus Westgren, Cecilia Götherström, Lyn S Chitty, Stakeholder views and attitudes towards prenatal and postnatal transplantation of fetal mesenchymal stem cells to treat Osteogenesis Imperfecta (2019) https://doi.org/10.1038/s41431-019-0387-4
Mats Johansson, Göran Hermerén, Nils‑Eric Sahlin, Paternal consent in prenatal research: ethical aspects, Medicine, Health Care and Philosophy (2019) https://doi.org/10.1007/s11019-019-09919-1
Hill M, Lewis C, Riddington M, Crowe B, DeVile C, Götherström C, Chitty L, Exploring the impact of Osteogenesis Imperfecta on families: A mixed-methods systematic review, Disability and Health Journal (2018), https://doi.org/10.1016/j.dhjo.2018.12.003.
Natalie Chandler et al, Rapid prenatal diagnosis using targeted exome sequencing: a cohort study to assess feasibility and potential impact on prenatal counseling and pregnancy management; Genetics in Medicine (2018) https://www.nature.com/articles/gim201830
Götherström C, et al., Stem cells and fetal therapy: is it a reality?, Obstetrics, Gynaecology and Reproductive Medicine (2017). http://dx.doi.org/10.1016/j.ogrm.2017.02.004
www.horizon2020projects.com, Boosting Bones; HORIZON2020 PROJECTS: PORTAL (2016) Document available in filestore Google Drive\BOOSTB4\Dissemination\Period 1
Jennifer Couzin-Frankel, Ailing fetuses to be treated with stem cells; American Association for the Advancement of Science (2016)
https://www.sciencemag.org/news/2016/04/ailing-fetuses-be-treated-stem-cells
L.S. Chitty, A.L. David, I. Gottschalk, D. Oepkes, M. Westgren, C. Götherström, O. Consortium, BOOSTB4: a clinical study to determine safety and efficacy of pre- and/or postnatal stem cell transplantation for treatment of osteogenesis imperfecta; Ultrasound in Obstetrics & Gynecology (2016)
https://obgyn.onlinelibrary.wiley.com/doi/epdf/10.1002/uog.17084
Presentations
17th June 2022 – Anna David (University College London PI) mentioned the BOOSTB4 project at the British Maternal Fetal Medicine Society 25th anniversary meeting in Nottingham, UK.
13th June 2022 – Anna David (University College London PI) mentioned the BOOSTB4 project at the European Society of Human Genetics in Vienna, Austria.
1st June 2022 – Eva Åström (Karolinska Institutet) spoke about the BOOSTB4 project at The Department Day of The Department of Women's and Children's Health at Karolinska Institutet, Stockholm, Sweden.
4th May 2022 – Eva Åström (Karolinska Institutet) spoke about the BOOSTB4 project at the Annual Meeting of the Nordic Network of Fetal Medicine held at Karolinska University Hospital, Stockholm, Sweden.
6th May 2021 – Partners at Great Ormond Street Hospital pre-recorded a presentation about their multidisciplinary team OI Service for the China-Dolls Centre for Rare Disorders, the largest non-profit association in China supporting children and adults with OI, who held a conference for clinicians and patients/families with OI on Wishbone Day (6th May). Details of the BOOSTB4 study were shared as part of the presentation.
15th April 2021– Anna David (University College London PI) spoke about the BOOSTB4 project in a presentation titled ”Fetal stem cell treatment for osteogenesis imperfecta” when she was an invited speaker at the at the international conference: Innovations in Fetal Therapy in Leiden University Medical Centre, the Netherlands.
April 2021– Anna David (University College London PI) spoke about the BOOSTB4 project in a presentation titled ”Current scope of intrauterine treatment for genetic diseases” when she was an invited speaker at the at the international conference: Tübingen Prenatal Annual Conference in Tübingen, Germany.
9th May 2020 – Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation on behalf of the BOOSTB4 consortium to the OIFE AGM - held online due to the COVID-19 pandemic.
5th March 2020 - Eva Åström (Karolinska Institutet) spoke about the BOOSTB4 project in a presentation titled “Stem cell therapy in fetus with severe OI” at the 6th Nordic Workshop on Skeletal Dysplasias.
31st January 2020 – Anna David (University College London PI) spoke about the BOOSTB4 project at the Royal College of Obstetricians and Gynaecologists Scottish Committee Senior Staff Conference in Dunblane, Scotland
16th January 2020 Eva Åström (Karolinska Institutet) presented a poster about the BOOSTB4 project at a meeting for Swedish neuro-pediatric doctors.
23rd November 2019 - Members of the BOOSTB4 consortium gave a workshop about the BOOSTB4 project at the international conference: Quality of Life for Osteogenesis Imperfecta (QoL4OI) in Amsterdam, the Netherlands.
23rd November 2019 - Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation about the BOOSTB4 project at the international conference: Quality of Life for Osteogenesis Imperfecta (QoL4OI) in Amsterdam, the Netherlands.
20th November 2019 – Anna David (University College London PI) spoke about the BOOSTB4 project in a presentation titled, "Treating genetic disease before birth - the future for fetal medicine," at the Sidra Medicine Research Series in Doha, Qatar.
26th October 2019 – Anna David (University College London PI) spoke about the BOOSTB4 project in a presentation titled, "The BOOSTB4 trial of in utero/postnatal stem cell transplantation for osteogenesis imperfecta" at the International Fetal Medicine and Surgery Society annual meeting in Sils, Switzerland.
26th September 2019 – Anna David (University College London PI) spoke about the BOOSTB4 project at the GEKO-working group on prenatal medicine at the Robert Koch Institute in Berlin, Germany
9th September 2019 – Rachel Sagar (University College London) gave an oral poster presentation about the systematic review she has conducted for the BOOSTB4 project at the International Society for Prenatal Diagnosis in Singapore.
9th September 2019 – Rachel Sagar (University College London) gave an oral poster presentation about the BOOSTB4 project trial protocol at the International Society for Prenatal Diagnosis in Singapore.
6-7th September 2019 – Rachel Sagar (University College London) spoke about the the systematic review she has conducted for the BOOSTB4 project at the International Fetal Transplantation and Immunology Society (IFeTIS) meeting in Singapore.
6-7th September 2019 – Magnus Westgren (Karolinska Institutet) spoke about the BOOSTB4 project at the International Fetal Transplantation and Immunology Society (IFeTIS) meeting in Singapore.
18th June 2019 – Anna David (University College London PI) spoke about the BOOSTB4 project at the RCOG World Congress in London, United Kingdom.
25-29th June 2019 – Rachel Sagar (University College London) spoke about
the the systematic review she has conducted for the BOOSTB4 project at the The Fetal Medicine Foundation World Congress in Alicante, Spain.
17-19th June 2019 – Rachel Sagar (University College London) presented a poster about the systematic review she has conducted for the BOOSTB4 project at the Royal College of Obstetricians and Gynaecologists World Congress in London, United Kingdom.
21st May 2019 - Dick Oepkes (Leiden University Medical Center) spoke about the BOOSTB4 project at an in-house seminar titled: "The wonderful world of pregnancy - on fetal and maternal research"
29th March 2019 - Oliver Semler (University of Cologne) spoke about the BOOSTB4 project at a meeting of the German Society of Pediatric Nephrology.
9th February 2019 -Oliver Semler (University of Cologne) spoke about the BOOSTB4 project at a regional meeting of prenatal medicine.
28th September – 1st October 2018 – Cecilia Götherström (Project coordinator at Karolinska Institutet) presented the BOOSTB4 trial in a presentation “Mechanistic and therapeutic advances in rare skeletal disorders” at the American Society for Bone and Mineral Research (ASBMR) 2018 Annual Meeting in Montréal, Canada.
17th – 20th August 2018 – Eva Åström (Karolinska Institutet) spoke about the BOOSTB4 project at the Brittle Bone Society meeting in Dundee, United Kingdom, the meeting was also attended by Oliver Semler (University of Cologne).
8th – 11th July 2018 – Lyn Chitty (Great Ormond Street Hospital PI) Presented an oral poster for the BOOSTB4 interview study at the 22nd International Conference on Prenatal Diagnosis and Therapy in Antwerp, Belgium.
16th - 19th June 2018 Melissa Hill (Great Ormond Street Hospital) spoke about the stakeholder views of stem cell therapy for OI at the European Society of Human Genetics Conference in Milan
13th – 15th June 2018 – Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation on behalf of the BOOSTB4 consortium at the Nordic Orthopaedic Federation’s 59th NOF Congress in Reykjavik, Iceland.
11th – 12th June 2018 – Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation on behalf of the BOOSTB4 consortium at the International Fetal Transplantation and Immunology Society (iFeTIS) meeting in Stockholm, Sweden.
12th April 2018 - Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation on behalf of the BOOSTB4 consortium at the Joint Finnish-Swedish Bone Symposium on board the Tallink Silja Line m/s Galaxy
27th March 2018 – Anna David (University College London PI) spoke about the BOOSTB4 project at the Perinatal Society of Australia and New Zealand Annual Scientific Congress, Auckland, New Zealand.
15th March 2018 - Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation on behalf of the BOOSTB4 consortium at the 1st Swedish National Conference on Advanced Therapy Medicinal Products in Lund, Sweden
6th October 2017 – Ralph Sakkers and Caroline Lindemans (University Medical Centre Utrecht) spoke about the BOOSTB4 project to the Dutch patient group Osteogenesis Impecta Vereniging in The Netherlands.
12th – 13th September 2017 – Cecilia Götherström (Project coordinator at Karolinska Institutet) was invited to attend EU-MSC2to discuss the use of Mesenchymal Stem Cells in the BOOSTB4 project at Leiden, The Netherlands.
30th August 2017 – Magnus Westgren (Karolinska Institutet) spoke about the BOOSTB4 project to the Svensk förening för Obstetrik och Gynekologi (SFOG) in Stockholm, Sweden.
27th – 30th August 2017 – Catherine DeVile (Great Ormond Street Hospital) Presented a poster for the BOOSTB4 interview study at the 13th International Conference on Osteogenesis Imperfecta in Oslo, Norway.
27th – 30th August 2017 – Cecilia Götherström (Project coordinator at Karolinska Institutet) gave a presentation about the BOOSTB4 project at the 13th International Conference on Osteogenesis Imperfecta in Oslo, Norway.
11th – 13th August 2017 – Catherine DeVile (Great Ormond Street Hospital) spoke about the BOOSTB4 project at the Brittle Bone Society Annual Conference in Newcastle, United Kingdom.
9th – 12th July 2017 – Lucy Jenkins (Great Ormond Street Hospital) gave a presentation on behalf of the BOOSTB4 consortium at 21stInternational Conference on Prenatal Diagnosis and Therapy in San Diego, USA.
13th June 2017 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the 8thInternational Conference on Children's Bone Health in Würzburg, Germany.
23rd March 2017 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the 3rdInternational Fetal Immunology and Transplantation Society (iFeTIS) at the Children's Hospital of Philadelphia, USA.
24th February 2017 – Lyn Chitty (Great Ormond Street Hospital PI) spoke about the BOOSTB4 project at the Brittle Bone Society Scientific Symposium in London, United Kingdom.
26th October 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet), Lilian Walther Jallow and Annika Goos (Karolinska Institutet) participated in an exclusively Swedish exhibition called Spelplan Europa, “Gameplan Europe”, arranged by Sweden's Vinnova. The conference gathered more than 200 representatives from the European Commission, Swedish government and stakeholders from academia, industry and the public sector.
19th – 22nd October 2016 – Ingo Gottschalk (University of Cologne) spoke about the BOOSTB4 project at the 61st annual meeting of the German Society of Obstetrics and Gynaecology, Stuttgart, Germany.
13th – 16th October 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the iMed Conference 8.0, Lisbon, Portugal.
22nd September 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about MSC Therapy in Osteogenesis Imperfecta at the Bone Health and Regenerative Cells meeting in Åbo, Finland.
25th – 28th September 2016 – Lyn Chitty (Great Ormond Street Hospital PI) spoke about the BOOSTB4 project at The International Society of Ultrasound in Obstetrics and Gynecology (ISUOG) in Rome, Italy.
5th – 6th August 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the 1stAnnual Symposium on Cell and Gene Therapy in Vellore, India.
2nd – 7th August 2016 – Peter Lindgren (Karolinska Institutet) spoke about the BOOSTB4 project at the International Fetal Medicine and Surgery Society (IFMSS) 35th Annual Meeting in Kasane, Botswana.
10th – 13th July 2016 – Anna David (University College London PI) spoke about the BOOSTB4 project at the International Society for Prenatal Diagnosis (ISPD) in Berlin, Germany.
20th – 23rd June 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the eCM Congress XVII: Stem cells, Bone Fixation, Repair & Regeneration in Davos, Switzerland.
12th – 15th June 2016 – Magnus Westgren (Karolinska Institutet) spoke about the BOOSTB4 project to the Nordic Federation of Societies of Obstetrics and Gynecology (NFOG) in Helsinki, Finland.
26th – 28th May 2016 – Cecilia Götherström (Project coordinator at Karolinska Institutet) spoke about the BOOSTB4 project at the 8thEuropean Conference on Rare Diseases & Orphan Products in Edinburgh, United Kingdom.
5th – 7th April 2016 – Peter Lindgren (Karolinska Institutet) spoke about the BOOSTB4 project at the 2nd Nordic Network of Fetal Medicine in Copenhagen, Denmark.